Written By Olena Riznyk
LUCAN - Jake’s House was founded in 2004 by Irene and David Bodanis after their son, Jake, was diagnosed with Autism Spectrum Disorder (ASD) in 1995. Motivated by their personal experience, Irene and David aimed to create a place of understanding, support, and hope for families navigating the challenges of autism. They knew firsthand the difficulties autism presents not only to individuals but also to their families.
In 2004, Irene and David hosted the first-ever Jake’s House Holiday Party, bringing together families, caregivers, children living with autism, and supporters for a meaningful and inclusive experience. This event marked the beginning of Jake’s House as an organization dedicated to inclusivity, advocacy, and providing tangible support to the autism community.
As the organization grew, so did its commitment to offering a safe, supportive, and empowering environment for those affected by autism. With the backing of the Government of Ontario and the Government of Canada, Jake’s House was established as a registered charitable organization, and its programs expanded to reach more families across the region.
Jake’s House hosts numerous events, including their well-known annual holiday parties, which have become a symbol of their mission to create joy and foster community. These events provide a platform for residents to express themselves, caregivers to find respite and support, and individuals to connect with others who understand their journey. Throughout their events and programs, Jake’s House focuses on raising awareness about autism, sharing valuable resources, and building a network of supporters dedicated to making a lasting impact.
“It’s not the building, it’s the people, the program, and the magic that comes from listening to families and providing care. When we focus on what truly matters—understanding the needs of those we serve and fostering a community that thrives on compassion and support—that’s where the real transformation happens. It’s about creating a space where people feel at home, where they are not just cared for, but truly understood and respected,” said David.
However, on December 3, 2024, the Ministry of Children, Community and Social Services (MCCSS) abruptly cut funding. Residents themselves expressed fear and disappointment about the possibility of losing their home. Crystal, a resident of 15 months, shared her perspective: “I’ve made friends here. We get to go out, we do activities, we go to sports games. I don’t want to leave.” She also highlighted the skills she has developed through the residence’s programs: “I took cooking classes and learned to make butter chicken and berry crumble. I’ve also been to three concerts since living here—it’s been amazing.”
“We really thought it was her forever home. Now, we have no Plan B,” said her family.
This sudden funding cut is part of a troubling trend in Ontario, where over 52,000 people are on the waiting list for housing and support services for individuals with developmental disabilities. Despite this overwhelming demand for housing, the residents of Jake’s House are being forced out of their homes.
At Jake’s House, residents receive personalized care that includes medical support, recreational activities, and a sense of community that many had not experienced before. For families, the residence has been a godsend.
“This is not an institution; this is a community,” said Jeanette Wannamaker, whose brother Paul and sister-in-law live at Jake’s House. “They have their own suite, participate in community activities, go to church, and receive medical support.”
“It’s been just marvelous for us,” continued Jeanette. “My brother no longer takes panic attacks, and he receives the medical care he needs. It’s a safe space for him, and we feel at ease knowing he is well taken care of.”
The model at Jake’s House is unique. The residence combines seniors and individuals with autism and developmental disabilities, creating a community where both groups thrive. The seniors provide valuable companionship and mentorship, while the younger residents benefit from the wisdom and experience of older individuals.
The residents of Jake’s House are not just being cared for—they are being given opportunities to grow and pursue their own goals. The activities at Jake’s House are tailored to the residents’ individual interests and abilities, allowing them to experience life in a way that is fulfilling and meaningful.
But now, with funding cuts looming, families are being forced to confront an uncertain future. The decision has left families and staff alike frustrated and bewildered. Their fight is a reminder that the most vulnerable members of our society deserve not only our compassion but our unwavering support. As Jeanette put it, “This place has given my brother a chance to live a better life. We won’t stop fighting to make sure he, and everyone else here, can continue to do so.”
